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Home | Online Resources: Link to a Topic | Caregiving & Beyond
 
caregiving and beyond
 

General Information:

  National Family Caregivers Association
    NFCA is a grass roots organization created to educate, support, empower and speak up for the  millions of Americans who care for chronically ill, aged or disabled loved ones.  Membership is free to those who live in United States.  

  Administration on Aging: Caregiver Resource Room
    The Administration is an agency of the United States Department of Health and Human Services. The AOA provides a wealth of information for caregivers – including such topics as Medicare, driving, family communication, etc….

  Geriatrics for Patients, Caregivers and Health Care Professionals
    Dr. Robert Stall, an Internist / Geriatrician with the University of Buffalo, regularly updates this website.  The text can be translated into Chinese, French, German, Italian, Japanese, Korean, Portuguese or Spanish from links at the bottom of his webpage.  

Finding Help in Ocean County:

 Ocean County Office of Senior Services
    This is the very first place you should contact.  This office has many brochures and contacts.  They compile annual lists of adult communities, licensed long term care, assisted living and other alternative living facilities in the county plus many other helpful resources.

  Ocean County Resource Directory
    This directory lists a wide range of non-profit organizations to help you. 
    Use the Topic Index to find:

    Adult Day Care
    Developmental Disabilities
    Disabled 
    Friendly Visiting
    Homemaker / Health Aide
    Hospice Services 
    Medical Transportation: Elderly / Disabled
    Rehabilitation Services
    Respite Care

Contact your local municipality.  Some townships offer services for their senior residents.

Many local religious and humanitarian organizations will also help.  

Caring for Yourself

 Caregiver Burnout
    Ohio State University Extension and the Ohio Department of Aging present information concerning causes and prevention of this subject.

 Strategies to reduce the risk of back strain
    The Government of Western Australia presents this site.

MM Caregiver Grief Inventory

All caregivers experience grief while caring for a loved one. Complete the survey then take it to your doctor. To view this link, you will need the free Adobe Acrobat Reader

Caring Connections: Caring for the caregiver

This website provides information and practical tips for managing the stress of being a caregiver by attending to your personal needs. Though they may seem selfish, these ideas will help you continue to provide care for as long as your family member or friend needs it.

 Local Alzheimer's Disease Caregiver Support Group Meetings In Ocean County, NJ
The Caregivers of Central Ocean County and Caregivers of Lakewood, New Jersey, Inc. have joined together to provide support for caregivers.  Look here for the closest caregiver meeting place and a contact person. 

In-house Caregiving

 Alzheimer Caregivers
    The Alzheimer’s Association provides information which can be used by caregivers in any caregiving situation.

 Family Caregiver Alliance
    Family Caregiver Alliance: an Information Resource on Long-Term Care.
Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home.  Although the Alliance is based in California, much of the information provided is useful to any caregiver.

 Caregiver's Handbook
    This is a 9-part online posting which provides suggestions for personal, nutrition, medical, emotional care.

Home Safety and Modification

Modifications can be simple - removing scatter rugs to prevent slips and falls - or complex- installing a stair lift or elevator to improve accessibility.

 Solutions for Living with Alzheimer's: The Caregiver's Guide to Home Modification
    “The purpose of this article is to provide information on modifying the home to care for a person with Alzheimer's. It is intended to make it easier for families and caregivers to create a safer and more sensitive home environment.”

How to Care: Home Modification / Home Safety

This site will tell you why and how to improve home safety. Don't know what to give or do for a birthday? - The "Helpful Products" list will solve the dilemma.

Hiring Help

 Independent In-Home Companion - Tips for Hiring
    The Alzheimer’s Association St. Louis Chapter provides an annual update of tips you should consider when hiring a companion. To view this link, you will need the free Adobe Acrobat Reader.

 Interview Checklist
   This South Carolina Department of Disabilities and Special Needs page will help you with interviewing, hiring, training, firing plus other useful tips when employing caregivers. 

Alternatives to In-house Care

 Homestore.com
    Use this quiz to help along with a physician’s or therapist’s suggestions to help decide the type of living facility that is needed.

 Medline Plus: Assisted Living
    Look here for the latest news, research, law, etc… and additional information regarding Assisted Living.

 Administration on Aging:  Housing with Services
    “The federal government does not establish standards for assisted living as it does for nursing  homes participating in the federal Medicare program."  This site provides a wealth of leads of information for anyone considering Assisted Living.

 Helping You Choose Quality Assisted Living
    The Joint Commission on Accreditation of Healthcare Organizations provides a list of “questions to ask of an assisted living facility.”

 Medicare Nursing Home Compare
    This includes information only on nursing homes that are Medicare or Medicaid certified.   The evaluations are performed by each state.  It is only a guide.  Your own or a friend’s experience within the walls of the facility may be your best tool.

 New Jersey Ombudsman for the Institutionalized Elderly
    Are you concerned about the treatment of a loved one in a nursing home?  The Ombudsman accepts complaints via a 24-hour toll free line at 1-877-582-6995.  

Long Distance Caregiving

UCSB HR: Elder Care

The Human Resources Department at University of California - Santa Barbaras has created a page for their employees. The majority of the information is helpful for any long distance caregiver.

How to Care: Your Eldercare Survival

A Canadian website with many topics and suggestions for long distance caregiving.

AARP: Caregiving

The topics on this page are helpful for caregivers to begin thinking about the health and financial care of a parent. Topics include: Guardianship, Hiring a Home Health Care Worker, Valuable Documents at your Fingertips, Whose Caring for the Caregivers, Long Distance Caregiving, and Long -Term Care Ombudsman.

AARP: Family Caregiving

AARP provides free online seminars for caregivers. They include: Managing the Details, Navigating Your Way to a Quality Assisted Living Facility, Options and Stategies for the Care of Your Aging Parents, and Planning for the Care of Aging Parents.

Children of Aging Parents: Helpful Links

CAPS provides many links to products and services including assistive products adaptive clothing. The Guide to Retirement Living covers: Virginia, Maryland, New Jersey, Washington DC, Pennsylvania and Delaware.

Living with Dying:

 Hospice Foundation of America

    “HFA is a nonprofit organization that promotes hospice care and works to educate professionals and the families they serve in issues relating to caregiving, terminal illness, loss and bereavement.”

 Saint Barnabas Healthcare System-Center for Hospice Care and Van Dyke Hospice

    Saint Barnabas maintains a hospice program at their Community Medical Center in Toms River.

 Hospice and Palliative Care for Patients, Caregivers and Health Care Professionals

    Dr. Robert Stall, an Internist / Geriatrician with the University of Buffalo, regularly updates this page of hospice links.

Hospice Patients Alliance: Signs and Symptons of Approaching Death

I wish someone had told me what to look for when my parent's were dying.

Grief Counseling

 Hospice Foundation of America: Grief Resource Page

   The Foundation provides helpful suggestions of links and additional reading. Suggestions for handling grief during the holidays are also included.

 Caring Connections: Grief

There is no right or wrong way to grieve after a significant loss. Most discover how to eventually move on with life, even though the grief experience is a difficult and trying time.    

Additional Information

 Ocean County Library-'Specially for Seniors
    Our own page for seniors has links for money, law, care, nutrition, and more.  

Books and Videos available through the Library:

  The American Medical Association guide to home caregiving / Angela Perry, Medical Editor.

  And thou shalt honor: the caregiver's companion / edited by Beth Witrogen McLeod.

  Caregiving and loss: family needs, professional responses /
    edited by Kenneth J. Doka and Joyce D. Davidson

  Davidson, Frena Gray.  The caregiver's sourcebook

  The Family guide to long-term care v. 1: getting started.
    Learn what to do when an aging parent begins to need more assistance than you can provide.  Overcome the confusion often associated with the early stages of managing the care of a loved one.

  The Family guide to long-term care v. 2: making the right choice.
    This program addresses the issues and questions family’s face when a loved one requires care outside the home.  It will help you understand the range of long-term care options available today, and evaluate which is best for your situation.

  The Family guide to long-term care v. 3: staying involved  
    This video will show you how the family's role remains critical after a loved one moves into a care facility.  Experts in the field, including physicians and other healthcare professionals; offer specific information on how to help your loved one live successfully in his or her new surroundings.  

  FitzRay, B. J.  Alzheimer's activities: hundreds of activities for men and women with Alzheimer's disease and related disorders

  Focus on the family complete guide to caring for aging loved ones.
    This is the official book from the Focus on the Family Physicians Resource Council.

  Strom, Kay Marshall.  
    A caregiver's survival guide: how to stay healthy when your loved one is sick

  Teitel, Rosette.  The handholder's handbook:
    A guide to caregivers of people with Alzheimer's or other dementias  

  Kraatz, Eileen.  A Spy in the nursing home: 
    Inside tips and tactics for choosing the right on in 5 days.  These 75 pages of step-by-step instructions will help you evaluate nursing homes and assisted living facilities.

The Ocean County Library has other books about this subject. Additional items, such as compact discs and videos, may also be available. To find more, please use our catalog, or contact your local branch.

 

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Researched and compiled by Sandra Stark
Edited by Carl Paulson  

 
 
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